Privacy Policy
This privacy policy outlines how the OSCAR Rare Disease Network uses and protects any personal data that you provide when using the ESPE–OSCAR Science Symposium website.
1. Data Controller
The data controller responsible for processing your personal data is:
OSCAR French Rare Disease Network – Bone, Cartilage and Calcium Disorders
Bicêtre Hospital, AP-HP
78 rue du Général Leclerc
94270 Le Kremlin-Bicêtre – France
2. What Personal Data We Collect
We may collect the following information through our contact and registration forms:
- Full name
- Professional title and institution
- Email address
- Phone number
- Other information relevant to event registration or participation
3. Purpose of Data Collection
Your data is collected for the following purposes:
- Managing registration for the symposium
- Sending event-related communications
- Issuing certificates or confirmations
- Internal statistics and reporting
4. Legal Basis for Processing
Your data is processed based on:
- Your explicit consent (e.g., when submitting a form)
- Our legitimate interest in organizing a scientific event
5. Data Retention
Personal data will be retained only for as long as necessary to fulfill the purposes for which it was collected, and in accordance with legal and regulatory obligations.
6. Sharing of Data
We do not sell, rent, or share your personal data with third parties except:
- With authorized service providers involved in the organization of the symposium (e.g., IT, email distribution)
- If required by law
7. Your Rights
In accordance with the EU General Data Protection Regulation (GDPR), you have the following rights:
- Right to access your data
- Right to rectify your data
- Right to request erasure ("right to be forgotten")
- Right to restrict or object to processing
- Right to data portability
To exercise these rights, please contact us at: [insert email address]
8. Cookies
This website uses cookies to improve the user experience. You can configure your browser settings to refuse all or some cookies. Continued use of the website implies your acceptance of our cookie policy.
9. Data Security
We implement appropriate technical and organizational measures to protect your personal data against unauthorized access, alteration, disclosure, or destruction.
10. Contact
If you have any questions about this privacy policy or how your data is handled, you can contact us at: filiere.oscar@aphp.fr